This possibly wonāt be very coherent because Iām using my voice to text software and Iām mostly venting! Plus Iāve got some pretty strong painkillers in my systemā¦!
Twice this week Iāve been injured by healthcare professionals trying to āhelpā me. Today I had to go to a&e to make sure I hadnāt fractured anything because someone tried to āhelpā me yesterday. Itās really frustrating.
People like me who have long term health conditions develop ways of doing things so that we can stay as independent as we possibly can. Thereās a reason why we do things the way we do and itās not always obvious to other people why, but, trust me, we do them that way for a reason. Even people who have temporary injuries or fractures which heal within a few weeks still work out ways of managing. They might not be as finely honed as someone with something long term, but if it works for them and thatās how theyāve chosen to do it, then it still needs to be respected.
The issue isnāt the help. Itās the assumption that the healthcare professional knows the best way of helping and tries to implement it without checking or asking. I know why they do it:
ā itās quicker (for them) if they just do it
ā Theyāve had training on the most efficient and ābestā way of assisting someone
ā Their way is health and safety approved
ā It means they donāt injure themselves
But like I said, itās not always obvious what the whole story is. At the moment, Iāve got two fractures in both feet and Iām recovering from a recent shoulder dislocation. However, the only visible sign of a physical disability is the fact that Iāve got a moon boot on my right foot and carry a crutch in my right hand. In theory, I should be using two crutches or using it in my left hand, because itās my right foot thatās injured. But I canāt do that because itās my left shoulder which I dislocated, so I canāt put any force through it to use a crutch. And Iāve also got fractures in my left foot, which changes the way I move around. To a healthcare professional, it might look like I donāt know what Iām doing. Whereas everything Iām doing is because I have to risk assess which limb has the least potential to get damaged with every move I make. They canāt see my shoulder injury or left foot fractures though. And if they donāt askā¦
Hereās what happened this week:
I went for an MRI, ironically on my left shoulder, and the radiographer didnāt ask what was wrong with it or how I cloud move it and pulled me by my injured shoulder to position me for the MRI. This really hurt and meant that I struggled with activities for the next couple of days which I could do myself before he did that. The joint is really unstable at the moment and Iāve dislocated it three times. He just assumed that because my shoulder wasnāt in a sling, it was just a āroutineā scan. He apologised but the damage had already been done.
I went for my Covid vaccination yesterday and space was a bit tight in the cubicle. The nurse took my crutch off me because it was in her way. (Sidenote: donāt just take mobility aids away from people, it induces the same amount of panic as if someone just whips your handbag or phone away from you. Itās your lifeline!) Then she gave me my crutch back Afterwards but didnāt give it to me in a useful way, then stood in the way of me being able to manoeuvre it myself to stand up. She tried to offer me help on my left side, which meant I very quickly stood up twisting my right leg underneath me to try to avoid her pulling on my shoulder, which had already been injured earlier in the week by someone trying to āhelpā me. Getting up from a chair is actually a really difficult task when youāre wearing a moon boot anyway, let alone when youāve got all the other injuries Iāve got too.
I tried to tell her that I had a system, but because she kind of launched herself at my left side I reacted instinctively and just wanted to get out as quickly as possible. I protected my shoulder, but I twisted my right leg and put weight through at the same time and things crunched in my hip/thigh.
This morning I couldnāt put any weight through my leg without a lot of pain. And I couldnāt walk at all without my crutch, whereas before Iād just been using it as support when I left the house. I was in a lot of pain and all of my fractures In the past felt the same so I decided that I should probably go get it x-rayed to make sure it wasnāt broken. Thankfully it isnāt, itās muscular damage from having twisted it funnily. But now I canāt walk/weight bear without immense pain and Iāve been told to rest for the next couple of days.
For the sake of 30 seconds for each of these healthcare professionals this week, itās cost me my independence, Iāve had to cancel some medical appointments in the next two days because I canāt physically get to them, Iāve had to increase my painkillers, my dad has to take time off work to help me because Iām struggling to get around and am massively at risk of falling over or getting stuck somewhere e.g. the toilet.
Today was ājustā muscular damage and itāll only be for a couple of days, but thatās not really the point. In the bigger picture, this has made my life incredibly difficult. And the reason why is because someone assumed they knew the best way to help me rather than asking me. And when I did try to explain, I was met with the attitude of I should be grateful that I was being offered help, which is a whole other issue in itself.
Today the staff in a&e were very good at helping me. Hereās why:
ā they asked if I actually wanted their help (which is actually really empowering as a disabled person, even if it might not seem like it.)
ā they asked me questions like how can I help you get onto the bed/do you need me toā¦?/ am I in your way if I do X?
ā they told me they didnāt want to assume they knew best and to let them know what I needed
They had the full story summarised on my chart so they didnāt have to assume anything. But from asking the question to me manoeuvring in a way that was helpful and as painless as possible for me was less than a minute of their time. The questions could still be the same and applied to the situation regardless of how much information they had. Whereas for the sake of that minute yesterday, I had to spend 3 hours in a&e today and itās had a massive impact on my life for at least a few days. Plus Iām in lots of pain. Which is never good!
Aside from getting a bit of frustration off my chest, I guess this post is to highlight that just because you think you might be helping, doesnāt necessarily mean you actually are. That an assumption is just as bad if not worse than no help at all, because of the consequences of it.That people are complicated and there is usually lots going on which might not make sense to you, but Itās still down to the patient to decide whatās best for them. At best, the patient has to potentially fend off help which they donāt want. At worst, we get injured. But it does feel a bit like Iāve been assaulted in a way, because someone did something without asking me first and Iāve got injured because of it. While there werenāt any malicious intentions, the outcome is still the same. Plus it happened twice this week. That makes future appointments more anxiety inducing for a while.
Now Iām going to top up my painkillers and hopefully try and sleep!